Subscribe to:
POZ magazine E-newsletters
POZ Personals Sign In / Join
Username:
Password:

Back to home » Archives » POZ Magazine issues




Table of Contents


10 Ways to End AIDS (in 10 years)

Happy New You

Political Science

"Prevention" for Positives

Habitats for HIVers

On the Job

Going Under Cover

All the Right Places

2024: AIDS Cured, ex-PWAs Ignored

Trouble Indemnity

Earthwatch

Show & Gel

Healthful Humor

Living on Hope

Milestones

High Resolution: New Year’s Creeds

2004: What’s In, What’s Out?

Briefs

When Your CD4s Count

New Med on the Shelf

Quick Study: Virus in Vaginas

Strike a Pose

Chicago Hope?

Quick Study: Hep C

Watch Your Mouth

2X

CMV Drug Does Double Duty

Bed Head

Unreality TV

Mailbox

Publisher's Letter

Amazing Race


Most Talked About

Does Undetectable Equal Uninfectious? (21)

Just Found Out? A POZ.com Guide for HIV Rookies (11)

The Blood of Christ (a powerful one-man AIDS protest) (Blog) (9)

The State of AIDS in Puerto Rico (9)

Rethinking Criminalization of HIV (8)

Life Expectancy With HIV Increases Dramatically (6)

Most Popular Lessons

The HIV Life Cycle

Herpes Simplex Virus

Human Papilloma Virus (HPV)

Shingles

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)



emailrssprint

January 2004


Bed Head

by Joe Westmoreland

Joe Westmoreland rouses himself long enough to recount his never-ending struggles with fatigue

Waking up is not a problem. Every day at 9 a.m., the sound of 30 or so preschoolers screaming their Keds off blasts out of the open windows of the daycare center below my apartment. It’s getting up that’s the nightmare: My body feels like rubber. My mind’s in a total fog. By the time I work up the energy to crawl out from between the sheets, those rambunctious rugrats are practically sprouting body hair.

Considering all the HIV-related crises I’ve survived over the years—KS, wasting, CMV—I never dreamed that common, everyday fatigue would be the toughest one to overcome. What’s truly tiresome about my tiredness is that I don’t know for sure what’s causing it: one, some or all of the dozen meds I take? HIV itself? The fact that I’m over 40? All of the above? These questions, in turn, raise more unsettling ones: Is fatigue simply a part of “long-term survival”? As the beneficiary of HAART therapy, should I just shut my mouth and be grateful that I’m alive?

I know that sleeplessness is part of the problem: My usual nightcap of five meds includes Sustiva, which often makes me hallucinate before I drift off—my bedside radio once morphed into a dollhouse—and gives me disruptive dreams. Another culprit could be the stress my meds put on my liver, but a recent biopsy showed that, all things considered, it’s holding up fine. My doctor thinks I “don’t have anything to get out of bed for.” When he said that, I wanted to scream at him: “Staying healthy and fighting AIDS is a full-time job!”

But I didn’t have the energy.

Here are some of the things I’ve tried in order to combat my fatigue: Yoga. Vitamins. Vitamin B-12 mixed with testosterone shots. Maintaining a positive attitude. Taking Percocet and OxyContin to relieve painful neuropathy in my feet. Taking the antidepressant Lexapro. Drinking coffee. Stopping coffee. Drinking tea. Switching to green tea. Acupuncture. Injections of Procrit and Neupogen to build red and white blood cells. Cutting out sugar. Napping. Taking a day off from all doctors’ appointments. Going to the gym because “the more energy you build, the more energy”…zzzzzz. Sorry! Drifted off there.

Easily the wackiest anti-fatigue tack I’ve taken was a visit to “internationally recognized healer” Dr. Eric Pearl (he’s trained as a chiropractor). I finagled an assignment to interview this handsome guru at a New York hotel. When he ushered me into his suite overlooking the city’s glittering harbor, my energy level perked up immediately! He explained that he allows energy to move through him to the patient and asked me to remain “childlike” and “open.” But as he spoke, my mind wandered to a realization: I hadn’t come to see Dr. Pearl to relieve my fatigue; I wanted him to rid me of AIDS. I’d never have to take my meds again.

Shortly after my sexy but not terribly productive encounter with Dr. Pearl, I unexpectedly scored two weeks vacation at my acupuncturist’s country house (now that’s alternative medicine!) And I had a real rest. I breathed good, clean air and spent a lot of time just sitting and staring at the sky. I confess that when I came home, my fatigue hadn’t lessened. But on some deeper level, my batteries were recharged. For the first time since my first major illness eight years ago, I was able to remember who I was before I got sick, before AIDS hit. And remembering all the dreams and plans I had got me going. Now, when those high-pitched screams wake me up at 9 a.m., I remind myself that fatigue’s a bitch—but I’m not going to wear myself out about it.

emailrssprint

[Go to top]
Get Started
Get Answers
What to do if you've just been diagnosed
How to find a support system
Things you should know before starting treatment
How to handle side effects and other concerns
How to tell someone you have HIV/AIDS

Talk to Us
Weekly Poll
Question: Do you agree with Former President Bill Clinton's comments that Barack Obama is ready to fight the AIDS epidemic in the United States?
Yes
No
Not sure

Monthly Poll
Question: Is the Latino community excluded  from conversations about the domestic AIDS crisis?
Yes
No

Surveys
Tell us about your pets.

Do you use social-networking sites?

more surveys  
[ about Smart + Strong | about POZ | POZ advisory board | partner links | advertise/contact us | site map]
© 2008 Smart + Strong. All Rights Reserved. Terms of use and Your privacy