April Fool's Day is Bryce Courtenay's book about his son Damon
and his experience with AIDS in Australia, and despite being a
bestseller in the U.K., Australia, New Zealand and South Africa, if
the New York City publishing cartel has its way, it will never be
published in the United States.
This is doubly strange because Courtenay is the author of two
international bestselling novels, including The Power of One, which
Hollywood made into a film starring Stephen Dorff in 1991. Yet when
Courtenay took his book to his American editor, Kate Medina at
Random House in New York City, she "wouldn't even entertain the idea
of it," he says. "They said that the concept of a heterosexual
getting AIDS is simply unacceptable to their middle American
readers." He received similar responses from all the other major New
York houses he took it to.
America's loss.
April Fool's Day, named for the day Damon died, is the story of
his life, first as a hemophiliac, then as a hemophiliac with AIDS.
It is a stark tale, oddly told. There are few filters between the
book and the events it describes, making such instances as
Courtenay's first experience of his son's oncoming dementia -- told
in pared down prose, blow by ridiculous, sad blow -- more than
usually haunting.
Though the book is ostensibly about Damon -- whose illness,
because of its timing, more or less charted the evolving topology of
the Australian HIV and AIDS scene -- the insight it gives in
understated glimpses of the progression of its author is truly
fascinating.
Born in South Africa, but living for most of his life in
Australia, Courtenay is a very typical sort of dad. Small and
sprightly and gray at 62, he'll regale you with stories, one a
slight variation on another, until you're thoroughly convinced he's
mystical -- or really hard-up for an anecdote. And he's really quite
the expert on more or less anything the conversation seems to be
steering towards, from geography to modern technology. He's not my
dad, but he could be.
As it happens, he was Damon's dad. In 1966, the year Damon was
born, Courtenay was a hard-drinking, hard-smoking, 33-year-old ad
executive with one of Australia's biggest ad firms -- a
self-described "expert avoider of the too-difficult moment." He
spent most of his time either at the office or out drinking with his
mates, leaving his two young sons and his wife pretty much to
themselves. When Damon was born with a bruise older than he was,
Courtenay had to begin to learn to be the parent of a hemophiliac.
Which didn't change him all that much. But it did change him just
enough to turn him from a really quite ordinary dad into something
extraordinary.
In the way of these sorts of changes -- these slight, almost
imperceptible personality shifts -- Courtenay began to merge his
Australian-style savoir faire (which includes considerably more
shoulder-jabbing and reference to one's loins than the original
French version) with the commonplace desire of a father to move
mountains to help his child. The outcome was a radically altered,
radically improved health care system. And that was before his son
got AIDS.
When Damon came downstairs one day in 1985 after getting a call
from one of his doctors and told his dad he was HIV positive, not
too much was known in Australia, by doctors or anyone else, about
the virus. "Some people seemed to be dying," Courtenay recalls,
"others not." Then the Courtenay's learned that AIDS would probably
kill their son. Neither Bryce nor Damon were to take this new
wrinkle sitting down.
Through his role as longtime spin doctor to most every Canberra
politician, Courtenay achieved in Australia more or less what GMHC
and ACT UP did in North America. That is, a move toward rational
health care and general treatment of AIDS and those living with it,
and a gradual acceptance of the syndrome as a syndrome, not a
divinely concocted punitive plague.
As a result there are now dedicated AIDS wards, round-the-clock
visiting hours, gay nurses for gay patients and several doctors
assigned to each patient to cater to the variety of AIDS-related
problems. There was considerable resistance to these developments
from the medical community, but, Courtenay says, "it's a wonder what
you can do with a quiet word in the right places when things get
stuck."
And since his son's death in 1991 and the writing of April Fool's
Day, Courtenay has become an unlikely activist, giving speeches,
opening an AIDS-focused exhibit of gay artists' work at Australia's
National Gallery, and creating a foundation, made up of all
royalties from April Fool's Day (which now, even without U.S.
distribution, total something over A$1 million), to give out about
A$100,000 annually to help the families of PWAs, and, as he says,
generally militating against "ignorance, stupidity, bigotry and
secrecy, the components which most often combine to cause the human
immunodeficiency virus to be spread through the community."