August / September #16 : Kids' Stuff - by Carola Burroughs

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Table of Contents

The POZ 50 Most Innovative AIDS Researchers

Attack of the Mutation Monster

A Woman of Substance

Into Africa

Above Average

Rock the Boat

Where the Heart Is

London Bridges

Roman Knows

The Way They Weren't

Now, Voyager

Chow Now

All in the Family

S.O.S.

Touch Me, Please

Memory Serves

Never Trust a Doctor

Global Warning

Kids' Stuff

Dynamic Duo: Marlene & Margaretha Diaz

Gathering Intelligence of the Resistance

Bleach Ball

Painless Punctures

Everything in Perspective

Food Frights

Pediatric Protocol



Most Popular Lessons

The HIV Life Cycle

Shingles

Herpes Simplex Virus

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)

What is AIDS & HIV?

Hepatitis & HIV


email print

August / September 1996

Kids' Stuff

by Carola Burroughs

Help for children with HIV and their families is on the way.

SUPPORT SERVICES

Children with AIDS Project of America
P.O. Box 83131
Phoenix, AZ 85071
800.866.2437.
Helps match HIV positive children with foster or adoptive families.

Just Kids Foundation
P.O. Box 42
Village Station
New York, NY 10014
Emily Gordon, 212.627.3390, or Marlene Diaz, 212.243.6653.
Advocacy and self-help strategies for parents and HIV positive children. Publishes newsletter and offers phone support.

Pediatric HIV Psychosocial Support Program, National Cancer Institute
Dr. Lori Weiner, Coordinator
Bldg. 10, Rm. 13N240
Bethesda, MD 20892
301.496.3062
e-mail: weinerl@pbmac.nci.nih.gov
Psychosocial support services for children and families participating in clinical trials, including travel and accommodation arrangements for children, case management, support groups and bereavement groups.

PWA Coalition/New York
offers toll-free phone peer support by mothers of children with HIV nationwide, Mondays, Wednesdays and Fridays, 2-6 p.m. EST. 800.828.3280 or 212.647.1420.

The Whitney Project
P.O. Box 2511
Santa Fe, NM 87504
505.473.7721
Pairs HIV positive children with a classroom of children living in another area, who provide support through letters, phone calls and more.


INFORMATION/RESEARCH

Association for the Care of Children's Health
7910 Woodmont Ave., Suite 300
Bethesda, MD 20814
800.808.2224 or 301.654.6549
e-mail: acch@clark.net
Internet home page: http://web.archive.org/web/20030612122123/http://www.wsd. com/acch.org/.
Membership organization of parents and professionals concerned with humanizing family health care. Provides advocacy, education, publications and videos.

Be a Friend: Children Who Live with HIV Speak
compiled by Lori Weiner, Ph.D., Aprille Best and Philip A. Pizzo, M.D. A book of writings and drawings by HIV positive/affected children. Available from Pediatric AIDS Foundation (see listing below).

Because You Love Them
by the Child Welfare League of America; a parents' planning guide that helps families explore feelings about AIDS and assists with permanency planning.
Available from the

CDC National AIDS Clearinghouse
P.O. Box 6003
Rockville, MD 20849
800.458.5231

Child Life News
newsletter, Gay Men's Health Crisis, Child Life Program
129 West 20th St.
New York, NY 10011
212.337.3625

Impact AIDS
440 Cerrillos Suite F
Santa Fe, NM 87501
415.861.3397
hotline in English, Spanish and Tagalog: 415.863.AIDS. Distributor of San Francisco AIDS Foundation materials.

National Pediatric and Family HIV Resource Center
15 S. 9th St.
Newark, NJ 07107
800.362.0071 or 201.268.8251
fax 201.485.2752
Provides consultations with health practitioners, technical assistance and training; public policy advocacy. Extensive list of resources, including Jimmy and the Eggs Virus, a booklet about a child who learns he is HIV positive.

Pediatric AIDS Foundation
1311 Colorado Ave.
Santa Monica, CA 90404
310.395.9051
National organization that funds pediatric HIV research and sponsors public education and school programs, especially dealing with disclosure issues.

Positively Kids
P.O. Box 4512
Queensbury, NY 12804
518.798.0915
fax 518.798.8940
e-mail: posikids@globalone.net Education and support services for families, friends and service providers of children and adolescents living with HIV; speakers bureau; public policy advocacy; newsletter.

State of the Art
4455 Connecticut Ave., N.W.
Washington, DC 20008
800.790.9267 or 202.537.0818
fax 202.537.0828
Produces videos: What's Best for You: Families Talk About Disclosure; You're in Charge, health consumer tips for parents of children with chronic illness. Also Video Series About Health Care for Haitian Families (in Creole).


RECREATIONAL & GIFT PROGRAMS
(All camps listed provide medical care.)

Birch Summer Project
Herbert G. Birch Services
145-02 Farmers Blvd.
Springfield Gardens, NY 11434
718.528.5754
Free residential camp providing recreation and developmental aid for children up to age 21, and respite, recreation, support and Training for their caregivers. Wheelchair accessible. Spanish spoken.

Camp Heartland
4565 N. Green Bay Ave.
Milwaukee, WI 53209
800.724.4673
Residential camp offering three sessions for HIV-impacted children in several locations around the country; open to children nationwide. Camp and transportation free to all children.

Double H Hole in the Woods Ranch
RD #2, Box 228
Lake Luzerne, NY 12846
518.696.5676
Summer camp located in rural New York with free weeklong program for children with HIV. Transportation costs not covered, but NY/NJ-area hospitals charter buses.

Grant A Wish Foundation
P.O. Box 21211
Baltimore, MD 21228
800.933.5470
For children under 18 with life-threatening illnesses. Nationwide programs include: Beach and Mountain Retreats -- free, fully equipped cabins and condos in northern Virginia for HIV-impacted families; and Support Group Sponsorship -- helps fund activities or meetings of support groups.

Make A Wish Foundation
100 West Clarendon, Suite 2200
Phoenix, AZ 85013
800.722.WISH
Grants wishes to children under 18 with life-threatening illnesses.

Sunburst National AIDS Project
P.O. Box 2824
Petaluma, CA 94953
707.769.0169
fax 707.769.0780
Weeklong residential camp for HIV-impacted families, located in the Sierra Nevada foothills. Camp and transportation free, but only six "camperships" per year available to out-of-state families.




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