March #170 : We Hear You...And We Know You Hurt.

POZ - Health, Life and HIV
Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:

Back to home » Archives » POZ Magazine issues




Table of Contents
 

For Cryin' Out Loud

Sex and the Salon




Is PrEP Positive?

PEP

We Hear You...And We Know You Hurt.

To a T

The Keys to HIV Nonprogressors

Tomorrow’s Treatments (And Some For Today)




Back From the Brink

Marathon Man

The Melody of HIV

A Tale of Two Tests

Trans Risk

Looking for Love Gloves?

Pozarazzi




Editor's Letter

Letters

Affirmative Ally in Idaho

GMHC Treatment Issues March 2011



 
Most Popular Lessons

The HIV Life Cycle

Shingles

Herpes Simplex Virus

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)

What is AIDS & HIV?

Hepatitis & HIV


Scroll down to comment on this story.


email print

March 2011


We Hear You...And We Know You Hurt.

A recent POZ.com blog, “New Empathy for Neuropathy,” by Laura Whitehorn, 
hit a nerve—pardon the pun—with our readers. (Peripheral neuropathy, or PN, 
is pain, tingling or numbness in the limbs caused by some HIV drugs, among other things.) The responses reminded us that life with HIV isn’t always “manageable.” Here’s what some of you said:

“People look at me like I’m crazy when I say I’m in pain from PN. They always say, ‘You look fine.’”



“I have built up pain tolerance over the last 20 years [from] the things HIV/AIDS and the meds have given me. Neuropathy is something I would not even wish on [George W.] Bush.”

“The pain was like putting my feet in a deep fryer 24/7.”

“I wonder how folks deal psychologically with being in pain day after day. It makes me pretty depressed at times.”

“Anticonvulsants worked for a period. But eventually the dosage needed to be increased to give sufficient relief, and then there were side effects.”

“[Effective] meds, a positive attitude and a drive to move forward every day have assisted [my] well-being.”

“We need specialists who know how pain management relates to HIV and the medications [we take to suppress it].”

Click here to search neuropathy on POZ and learn more about PN.
Click here to read Laura Whitehorn's blog, “New Empathy for Neuropathy.”

Search: Laura Whitehorn, neuropathy, nerve, peripheral neuropathy, PN, pain


Scroll down to comment on this story.



Name:

(will display; 2-50 characters)

Email:

(will NOT display)

City:

(will display; optional)

Comment (500 characters left):

(Note: The POZ team reviews all comments before they are posted. Please do not include either ":" or "@" in your comment. The opinions expressed by people providing comments are theirs alone. They do not necessarily reflect the opinions of Smart + Strong, which is not responsible for the accuracy of any of the information supplied by people providing comments.)

Comments require captcha.
Please enter this number for verification:

| Posting Rules



Hide comments

Previous Comments:


  comments 1 - 1 (of 1 total)    

Drew50, Amsterdam, 2011-10-24 08:43:28
If it's any help to anybody reading about Neuropathy and HIV, I have created both a website in English and Dutch, www.neuropathyandhiv.nl and a Blog www.neuropathyandhiv.blogspot.com which are packed with information about neuropathy plus HIV. It began when I found that there was little information available in Dutch where I live so decided to do it myself. I'm English so I also translated it into English and linked it to a blog. Since then, visits from around the world have exploded.

comments 1 - 1 (of 1 total)    

[Go to top]

Join POZ Facebook Twitter Google+ MySpace YouTube Tumblr Flickr
Quick Links
Current Issue

HIV Testing
Safer Sex
Find a Date
Newly Diagnosed
HIV 101
Disclosing Your Status
Starting Treatment
Help Paying for Meds
Search for the Cure
POZ Stories
POZ Opinion
POZ Exclusives
Read the Blogs
Visit the Forums
Job Listings
Events Calendar


    Drew949
    South Orange County
    California


    july8th69
    brooklyn
    New York


    Fred9774
    Brooklyn
    New York


    Fergie911
    Chicago
    Illinois
Click here to join POZ Personals!
Ask POZ Pharmacist

Talk to Us
Poll
Will decriminalizing injection drug use help end the global HIV epidemic?
Yes
No

Survey
PrEP Course

more surveys
Contact Us
We welcome your comments!
[ about Smart + Strong | about POZ | POZ advisory board | partner links | advertising policy | advertise/contact us | site map]
© 2014 Smart + Strong. All Rights Reserved. Terms of use and Your privacy.
Smart + Strong® is a registered trademark of CDM Publishing, LLC.