March #142 : Native Soul - by Lucile Scott

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Table of Contents

The Long Haul

Native Soul

The POZ Diabetes Diet Makeover

Quitting Time

Boosting Immunity

Caffeine Fix

Staph Memo

Same Sheets, Different Day

Consider the Alternative

Flunking Math

Test Drive

Stage Fright

The New 90210?

Post It!

Nobody’s Foo

Media Police

HIV 101

Boston Latex

Getting Graphic

Power Surge

Inside the Box

Diagnosis: Stigma


Mailbox-March 2008

Editor's Letter-March 2008

Most Popular Lessons

The HIV Life Cycle


Herpes Simplex Virus

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)

What is AIDS & HIV?

Hepatitis & HIV

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March 2008

Native Soul

by Lucile Scott

Kory Montoya, a New Mexico Apache, was diagnosed with HIV in 1991. Here he marks National Native HIV/AIDS Awareness Day, March 20, by telling his story of growing up gay on a reservation and entering the army—only to return to his community to speak openly about AIDS and homophobia.

In 2001, Kory Montoya, now 42, quit his job without giving notice. He walked out of the Seattle clinic where he worked with the developmentally disabled, packed his bags and bought a one-way train ticket—heading for the Jicarilla Apache reservation in desolate northern New Mexico, where he grew up. Montoya, who is Native American, had lost touch with his mother and five siblings. His mom severed all ties with him after he came out as gay in a letter he sent her in the early ’90s—and as HIV positive in another letter, which he sent in 2000, nearly a decade after his diagnosis. Still, Montoya was determined to reconnect with his family. “I decided that I missed [them],” he says. “When I was up in Seattle, I met people who were positive, and their families accepted them and were there for them.”

Having finally arrived back home at the reservation, he walked up to his childhood porch. His mother answered the door—and, Montoya says, shut it in his face. He lugged his bags back out to the remote highway and hitchhiked to Albuquerque, three and a half hours away.

Montoya knew almost no one there, so he made his way to an HIV prevention meeting for Native Americans. “That’s where it all started,” he says. “I kept doing my homework and finding out the statistics of Native Americans living with the disease and finding that nothing is being done. There was no voice. So I decided to go out there and stand up.”

Today, seven years later, Montoya, who is 5'10" and has short-cropped black hair flecked with gray, travels the state visiting reservations, schools and substance-abuse centers to tell his story. He also sits on the Community Advisory Council of the National Native American AIDS Prevention Center; was appointed by New Mexico governor Bill Richardson to his HIV and AIDS Policy Commission; is a member of the New Mexico Community Planning and Action Group; and, this past spring, took the position of interim executive director at a New Mexico AIDS service organization. “Kory is totally devoted,” says Steve Garrett, also an Apache and Montoya’s predecessor at the organization, who was diagnosed in 1982. He helped mentor Montoya in AIDS advocacy. “In the past year,” Garrett says, “he’s really evolved and now totally gets [activism].”

The Native American AIDS community needs Kory Montoya. HIV rates in American Indian, Alaska Native and Native Hawaiian communities are estimated at 11.5 per 100,000, 40 percent higher than the Caucasian equivalent. Indeed, amfAR, The Foundation for AIDS Research, reports that Native Americans have the third-highest HIV-infection rate in the United States, after African Americans and Latinos. The rate may be even higher: Native Americans are often defined as “other” in surveys and did not get their current, most accurate U.S. census category until 2000, making any stat involving them hard to tabulate. “We are wary of letting people onto Native lands to take a head count,” Garrett says. “It goes back to when Europeans first entered this country. I mean, do you trust the U.S. government?”

Stigma and lack of HIV education deter testing among Native Americans (as they do among many other marginalized racial communities), and many Native people are not diagnosed until they have progressed to AIDS. The majority of Native peoples depend on Indian Health Services (IHS) for care, but the IHS budget meets only 50 percent of estimated need, and Native Americans get 40 percent fewer federal health funds per capita than any other group, including prison inmates. According to Charlton Wilson, MD, associate director of the IHS-funded Indian Medical Center in Phoenix, “HIV is near a tipping point in Native communities.”

Montoya’s journey with HIV began in 1984, when he enlisted in the U.S. Army, at the age of 18. After a three-year stint as a clerk in Germany, he was dishonorably discharged because of his sexual orientation; he left the service without even pausing to set up his veterans’ benefits. After spending the next three years wandering around the American West, he settled in Seattle in 1991. “I liked Seattle,” Montoya says. “I didn’t feel like living on a reservation. And I don’t think that I would have been accepted there [as a gay man].”  Shortly after his arrival, he tested positive for HIV.

These days, whenever Montoya addresses reservations about his status, hoping to fight stigma and homophobia, he often has Marie Kirk, the HIV coordinator for the Albuquerque Area Indian Health Board, by his side. “I do basic AIDS 101, then he shares his personal story,” she says. “We have 23 tribes in New Mexico, and 19 are not getting [any] HIV prevention education.” She adds that often only a few people show up at their reservation workshops. The reasons, she says, include insufficient prevention funds and an aversion to talking openly about personal issues, such as sex and substance abuse, which often fuel HIV infection. She says Montoya’s experience with his family is far from unique: “They don’t want shame to be brought on the family unit. Instead of being up-front and saying, ‘This is what my kid has,’ they wonder, ‘What will people say?’”

Indeed, in many Native American communities HIV is just another challenge to pile upon an overwhelming litany of social and health problems. Compared with other racial and ethnic groups, Natives have higher rates of poverty and STDs like chlamydia and syphilis. Their life expectancy is six years less than that of other Americans, and they are six times as likely to develop alcohol and drug dependence. “You can’t just say it is his or her problem,” says Kirk. “It’s a community problem. But there is a lot of shame.”

Over the past year, however, awareness efforts in Native American communities have become more pronounced. Embracing Our Traditions, one of the few national conferences to tackle HIV in Native populations, was launched in Anchorage in 2006. What’s more, March 20, 2008, marks National Native HIV Awareness Day, with events from parades to conferences occurring around the country. “I do believe we have made slow, steady progress,” says Wilson. “But the credit goes not to the health system, but to community leaders and advocates out there telling stories and providing a community voice.”

As one of those voices, Montoya is less optimistic: “Nothing gets done,” he says of developing concrete programs and funding. “People come and they want our input from all these committees I sit on. But nothing gets done.”

Soon after arriving in Albuquerque, Montoya developed PCP and visited an IHS clinic to get care. “I could hear the nurse talking to the doctor and saying she didn’t want to wait on me because I had HIV,” he says. Many Native Americans avoid visiting their local clinics because the employees are friends and neighbors who they fear will breach their confidentiality. And their clinics typically lack the funds and knowledge to treat HIV. “We can provide quality care if we have the right partnerships with AIDS service organizations, Ryan White [funds], and Medicaid and Medicare,” says Wilson. “If we are left with the resources we have, well, that can be a barrier.” While such referrals often work in more urban areas—where efforts like the Two Spirit movement are also working to develop a gay Native culture and combat homophobia—many native people live on isolated rural reservations, where the nearest hospital is an hour or two away. “They may have trouble getting transportation and miss their appointment,” says Kirk.

Wilson believes that reaching Natives requires tailoring programs to fit their unique culture, including educating elders and incorporating tribal health techniques. Their biannual Albuquerque Circle of Harmony Conference on HIV, organized by Kirk and facilitated by Montoya, always opens with a traditional sweat lodge and a talking circle. The next one is scheduled for 2009. “People are encouraged to share their experiences about abusing drugs or living with HIV,” says Kirk. “It’s different from most conferences because it comes from the heart, not the head.”

Kirk says that more positive Native Americans must start talking publicly to increase visibility and to get more HIV funds on track to benefit Native people. “Kory is [only] one person,” says Kirk. Montoya, who is on disability and does most of his activism on a volunteer basis, says, “It is difficult to get people with HIV who are Native to the table. They are afraid of the stigma and rejection.” Montoya says of his strained relationship with his own family, “They know where to find me,” adding, “It made me stronger. After my mother closed the door on me, I didn’t care if anyone knew who I was or knew my name.” More and more people are starting to.

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  comments 1 - 15 (of 16 total)     next > >>

Keera Abeyta, Ohkay Owingeh, 2012-04-20 12:01:12
I was looking at an old yearbook just the other day and saw what Kory had wrote to me.....I am so proud of him what he did accomplish and sadden that we lost contact with each other. today I googled his name and saw this page. I knew Kory as Kory Mann. He was always a sweet friend to me. I wish I could have been there for him.....

FREDERICK MANN, dulce, 2011-12-13 15:22:08

winter magoosh, mescalero, 2010-12-23 16:41:02
I heard about kory's story on world aids day in the mescalero reservation workshop & i was just amazed,and saddened. For some odd reason he stayed stuck in my head, so i had to look him up and see his face. & iam sorry for his loss.

Marv Bird, Auburn, WA, 2010-11-08 18:33:16
Stacey Mann... I am so sorry for your loss. I helped Kory get a place to stay in Portland with my fiend before he got his apartment. I just found out from that friend what happened last night.

Stacey Mann, Dulce, New Mexico, 2010-09-21 16:36:12
I loved my brother reguardless and I miss him. Sometimes, I dial his cell and realize he is not there. The only thing that keeps me going is prayer. Knowing that he is not suffering anymore. I still miss him...

Janet Richetti, Daytona Beach, 2010-08-19 10:06:35
May Kory never be forgotten, in any Community! A very "brave" and powerful person for the peoples, of all nations; all walks of life!

Anthony J Raiola, Staten Island NY, 2010-08-19 09:41:08
A very very good friend whom I attended many conferences with and shared many many phone calls and emails with. I will miss him dearly...

samantha kerr, High Artic of NWT, Canada, 2010-08-16 18:23:57
Bless Kory's heart and the inspiration he shared with so many. I was blessed to have crossed such an honourable path....I wish him healing and happiness now with his elders. Gone, but not forgotten. With Love .Sam in Canada

Shawna Benally, Kirtland NM, 2010-08-16 10:36:22
My heart has been heavy with confusion from the time I witnessed Kory's return and the reactions of our family. My heart is now empty. Kory was a very humble, caring, and outspoken person. I love my brother and know that he is now happy and well. I ask that in his memory and for the benefit of those he spoke for, please keep the message going. Continue the fight for those who can not speak for themselves.

seeker48, SLC, 2009-07-22 15:40:59
Kory,I read about you in POZ mag.,if there is sameone that I had to say WOW! to,it would be you. I'm native amer. to and I would like to hear from you and see how things are with you, ok!

David Velarde Jr, Dulce, 2008-12-01 15:47:18
I knew Kory Montoya as Kory Mann and it's unfortunate that his mother forsaked him. He was a nice young fellowand should be supported no matter what. Mu nephew is gay but for him my attitude is so what!

chuck, Maple Shade, 2008-06-12 13:51:12
Thank God for people like Kory Montoya. This world needs more people like him to speak up. He is a unique individual and all Americans, not just Native Americans should be proud of him

Roy Paulson, Hoffman, Minn., 2008-03-21 01:10:53
Hey Montoya. I sure understand what has happened to you. As a Gay Advocate with RAAN, Rural Aids Action Network, here in rural Minnesota I hear such tales often. I was lucky as I had parents who understood and supported me. At present, I'm working as hard as I can being a Survivor going on 24 years. If you ever need a friend please feel free to give me a holler. Poz magazine has my permission to give you my email address. Ol Roy

POZ in Iowa, Des Moines, 2008-03-18 19:42:38
I admire Kory for his bravery and his dedication to himself and his people. Keep it up man!

Nazbah, Oakland, CA, 2008-03-10 16:53:54
I applaud Kory's dedication, resilience, courage, and talent in working with our people regarding such a devastating epidemic in a time when it's challenging to talk about other issues currently debilitating our people. I wish you good health, lots of luck, and much encouragment in your endeavors. Ahe'he. Nazbah Tom

comments 1 - 15 (of 16 total)     next > >>

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