March #186 : Letters-March 2013

POZ - Health, Life and HIV
Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:

Back to home » Archives » POZ Magazine issues




Table of Contents
 

Features

Achieving the End

Falling Through the Cracks

From the Editor

Let's Stay Together

Feedback

Letters-March 2013

The POZ Q+A

Opening New Doors

POZ Planet

Turn Up the Music

Bookmarks

Country Remedy

Promoting PrEP

Native Talents

Bare Facts

All Dolled Up

Tickled Pink

Voices

The 360 Approach

Care and Treatment

See You in Six Months?

Studying Risk Factors for Mental Decline

Implementing Health Care Reform

Pregnant Women Struggling With Adherence

GMHC Treatment Issues March 2013

HPV Vaccine May Benefit Women With HIV

Research Notes

Prevention: Latino Epidemic Varies by Region

Treatment: Atripla vs. Stribild and Complera

Cure: A Cat-and-Mouse Vaccine Game

Concerns: Ex-Inmates Aren’t Retained in Care

POZ Survey Says

Listen to Your Heart

POZ Heroes

Farewell, Friend

   
Most Popular Lessons

The HIV Life Cycle

Shingles

Herpes Simplex Virus

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)

What is AIDS & HIV?

Hepatitis & HIV


email print

March 2013

Letters-March 2013

Mad About Mail Orders
In the article “Specialty Pharmacies Unscripted” (December 19, 2012) Larry Kramer sounded off on insurance companies that require individuals to purchase their HIV medication through mail order pharmacies rather than giving them the option of using local pharmacies.

We need to mobilize everyone against Blue Cross, Blue Shield, CuraScript and Express Scripts. The community HIV specialist pharmacist is critical in saving lives of people living with HIV. HIV clients need to have their voices heard and have a choice in their pharmacy care.
Michelle Sherman,
Dana Point

I started having this problem earlier this year. I’d been going to BioScrip (now Walgreens) for Atripla, but now I have no other choice but to use mail order. It’s not fair to not have any options, and it’s really inconvenient because it’s a lot easier for me to go to the pharmacy near me than to get something mailed.  
MC, New York City

I’m facing a similar issue here as I change insurance companies. How do we fight this? Is there already a group working on this issue, or do we need to form one now? Access to meds is literally a life and death issue—the importance of which cannot be overstated.
Carl, Chicago

I have had the exact same problems with my insurance company, UnitedHealthcare and its specialty pharmacy OptumRx. The sad truth is I have missed a total of seven days or 14 doses of my meds over the past two years because of the “personnel” problems associated with these huge, non-personal industries. I was forced to use OptumRx as my pharmacy four years ago and have yet to speak with the same customer service representative twice.
Rick McMahan,
Cantwell, AK

I just went through the same thing, and my pharmacy is filing an exemption request to keep me with them. They know who I am and what I need, and they do an excellent job! CuraScript can suck it!
Doug Williams,
Long Beach, CA

I received the same type of notification from UnitedHealthcare, removing my “specialty med” from a small caring pharmacy I’ve used for years. I must use the United-owned Quantum Rx. I’ve had bad luck with mail order before and have no desire to return to it. I’ve written an appeal letter but am not anticipating a positive response. I am willing to use an “in network” pharmacy. It should be illegal to force us to use a mail-order pharmacy owned by the insurance company!
Mr. Bill

Our insurer also “suggests” that we use the accepted mail order pharmacy. They will pay for three refills at a local pharmacy, and if we continue to use the store they will no longer cover the drug. We can use the local pharmacy—the insurance company just won’t pay for it!
MaryLou, Morrisville, PA

Editor’s Note: To find out how you can take action and fight to protect your access to safe and affordable medicine, visit
fight4rx.org.

Drinking and Dosing

The article “Mixed Messages on Meds and Booze” (December 3, 2012) examined the dangerous practice of skipping doses because of the false belief that alcohol and antiretroviral medication are a toxic mix.

None of us should be getting so blotto that we “forget” anything! I’ve taken my meds and had my bevvies too and am still here after 30 years. Moderation is always key. Glad somebody has put this in writing, because frankly I’m tired of getting dirty looks from my friends because I’ve got a lovely blue pill in one hand and a gimlet in the other!
John, HP

I’ve skipped [meds while] drinking because I [thought] it would be toxic. No one told me otherwise. Thanks for posting this article! Get the word out to caregivers.
Craig, Portland, OR

When I first tested positive in 2004 my drinking became even more uncontrollable than before. I never stopped taking my meds and never had any adverse side effects. I have remained undetectable, and my CD4 count fluctuates between 630 and 850. I just passed 28 months sober, and my numbers remain the same!
Michael Jones, Pensacola

I have been positive since 1985 and worked in an HIV clinic conducting research and primary care. I was told that the biggest reason for not taking meds when drinking was the diarrhea from mixing the two. I took mine and just dealt with the diarrhea. Not pleasant.
Paul

Dealing With Death
Forum member Aztecan created a thread titled “Death” (November 24, 2012) in the Living With HIV forums where he shared the loss of someone to AIDS because the person didn’t want to take his meds. To read this thread and others, visit forums.poz.com.

I have had people come into my life who for whatever reason can’t or won’t accept their diagnosis. As time goes on, you see them stuck in the same place, in denial or just not caring anymore what happens to themselves. It’s heartbreaking because you know that the disease will eat away at their spirit and that eventually the body will follow.
JG1962

Sorry you had to needlessly witness this yet again. I’m not sure what’s worse: watching those who died early on who wanted to live and didn’t have the ability, or those who have the ability and choose not to.
Wolfter

It is truly sad that he chose this option, especially considering he didn’t have any major issues with the meds or from the virus. But mental health issues cause people to do things they wouldn’t normally do, and mental health often goes unchecked. So I think it is probably safe to say he didn’t “choose” this in his right mind.
Tednlou2

Search: Blue Cross, CuraScript, ExpressScripts, Larry Kramer, mail order pharmacies, Insurance, alcohol, antiretroviral medication

Scroll down to comment on this story.



Name:

(will display; 2-50 characters)

Email:

(will NOT display)

City:

(will display; optional)

Comment (500 characters left):

(Note: The POZ team reviews all comments before they are posted. Please do not include either ":" or "@" in your comment. The opinions expressed by people providing comments are theirs alone. They do not necessarily reflect the opinions of Smart + Strong, which is not responsible for the accuracy of any of the information supplied by people providing comments.)

Comments require captcha.
Please enter this number for verification:

| Posting Rules



Show comments (0 total)

 
[Go to top]

Join POZ Facebook Twitter Google+ MySpace YouTube Tumblr Flickr
Quick Links
Current Issue

HIV Testing
Safer Sex
Find a Date
Newly Diagnosed
HIV 101
Disclosing Your Status
Starting Treatment
Help Paying for Meds
Search for the Cure
POZ Stories
POZ Opinion
POZ Exclusives
Read the Blogs
Visit the Forums
Job Listings
Events Calendar


    Drew949
    South Orange County
    California


    romanticseattle
    Tacoma
    Washington


    Fred9774
    Brooklyn
    New York


    thebake
    Sioux Falls
    South Dakota
Click here to join POZ Personals!
Ask POZ Pharmacist

Talk to Us
Poll
Is HIV/AIDS adequately portrayed in pop culture?
Yes
No

Survey
Pop Watch

more surveys
Contact Us
We welcome your comments!
[ about Smart + Strong | about POZ | POZ advisory board | partner links | advertising policy | advertise/contact us | site map]
© 2014 Smart + Strong. All Rights Reserved. Terms of use and Your privacy.
Smart + Strong® is a registered trademark of CDM Publishing, LLC.