POZ - December 2010: Long-Term Survival

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December 2010: Long-Term Survival

These days, many HIV-positive people can live long, healthy lives. But for those who have access to care and treatment, years of popping pills can take a toll on one's body. Are you a long-term survivor? POZ wants to hear how you've handled living with the virus through the years.
 
1. How long have you been diagnosed with HIV?
More than 25 years
20-24 years
15-19 years
10-14 years
5-9 years
Less than 5 years
 
2. Have you ever been diagnosed with AIDS (fewer than 200 CD4 cells or had one or more opportunistic infections)?
Yes
No
I don't know
 
3. How long have you been taking antiretroviral meds?
More than 25 years
20-24 years
15-19 years
10-14 years
5-9 years
Less than 5 years
I am not on medication (Skip to question 6)
 
4. Since you started taking antiretrovirals, has your viral load been consistently undetectable?
Yes
No
 
5. Have you ever taken a structured treatment interruption (STI) or "drug holiday"?
Yes
No
 
6. Have you ever had any of the following? (Check all that apply.)
Atherosclerosis (stiff blood vessels)
Cancer (any type)
Chronic breathing problems
Depression
Heart attack
High blood fat levels (e.g., cholesterol or triglycerides)
High blood pressure
Hepatitis B or C
Kidney disease
Mental deterioration/dementia
Osteoporosis (severe bone loss)
Peripheral neuropathy
Pneumonia
Stroke
 
7. Do you suffer from chronic fatigue?
Yes
No
 
8. Have you ever had lipodystrophy? (Check all that apply.)
Yes—loss of fat in my face
Yes—loss of fat in my limbs
Yes—fat accumulation in my belly
Yes—fat accumulation in my upper back
No
 
9. Based on your own experience, how accurate is the phrase "HIV is a manageable disease"?
Very accurate
Somewhat accurate
Not at all accurate
 
10. Have you ever been on disability (e.g., SSDI or SSI) for more than three months because of your HIV?
Yes
No (Skip to question 12)
 
11. If your health improved, did you discontinue disability and go back to work?
Yes
No
 
12. What year were you born?
 
13. What is your gender?
Male
Female
Transgender
Other
 
14. What is your sexual orientation?
Straight
Gay/Lesbian
Bisexual
Other
 
15. What is your ethnicity (Check all that apply.)
American Indian or Alaska Native
Arab or Middle Eastern
Asian
Black or African American
Hispanic or Latino
Native Hawaiian or other Pacific Islander
White
(please specify) 
 
16. What is your zip code?



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