POZ - December 2011: HIV Clinical Trials

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December 2011: HIV Clinical Trials

Pretty much everything we know about HIV treatment has come from research-and not just any research, but clinical trials involving HIV-positive people. People living with HIV today have yesterday's clinical trial volunteers to thank for the highly effective, better tolerated and easier-to-take medications now available. POZ wants to know if you've ever participated in a clinical trial or if you'd ever consider it. For more info, visit poz.com/clinicaltrials.
1. Have you ever participated in an HIV clinical trial or study?
No (skip to question 4)
2. If yes, what kind of trial or study was it?
Trial of experimental HIV treatment
Trial of an experimental treatment for an AIDS-related infection or cancer
Trial of an experimental treatment for a non-AIDS illness or other health problem (e.g., side effect of medications)
Trial of alternative/complementary therapy
A cohort or observational study
Not sure
3. How would you rate your overall experience in the trial or study?
Very positive
Somewhat positive
Very negative
Somewhat negative
4. Have you ever participated in an "Expanded Access" or "Treatment IND" program (access to an experimental medication before it is approved)?
Not sure
5. If you haven't participated in a trial or study, why not? (Check all that apply.)
I wanted to join but was told I didn't qualify
I don't need access to experimental treatment
I don't trust researchers
They are too risky
I don't like the chance of not getting the experimental treatment (and getting the placebo)
They take too much time
They are too far from where I live
They are too confusing
They didn't offer any/enough money for my participation
My health care provider has never mentioned clinical trials to me
I don't know where to find information on clinical trials
6. Would you consider joining (or rejoining) an experimental treatment clinical trial in the future?
7. Would you consider joining a clinical trial testing a possible cure for HIV, even if you wouldn't necessarily benefit and there were risks of side effects?
8. What are the benefits of joining a trial or study? (Check all that apply.)
It may provide you with a medication you need or want
It may provde you with expert medical care you need
It may provide you with important lab tests you need
It may be helpful for people living with HIV, now and in the future
It is a good way to make extra money
9. If you were to join or rejoin a trial or study, what would be helpful to you?
Childcare services
Transportation vouchers
Free meals
Money for your time
Access to a case manager or social worker at the site
Connecting with other people in the trial or study
10. What year were you born?
11. What is your gender?
12. What is your sexual orientation?
13. What is your ethnicity (Check all that apply.)
American Indian or Alaska Native
Arab or Middle Eastern
Black or African American
Hispanic or Latino
Native Hawaiian or other Pacific Islander
(please specify) 
14. What is your zip code?

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