Write a Comment
17 Comments
Hi-new poster here-controller since '87-Partner since'79.Sent 20 tubes of blood to MGH 2 years ago and now they want us to go up. Would prefer to go to SCOPE but living on SSI makes it impossible to relocate. From MA originally-all friends dead. They just found my labs from 2004 and according to the Zephyr Foundation I am 1 of 6 controllers that they are aware of that has tested at the 2,000+ T-Cell mark globally. I have to do something? Ideas on relocating to CA appreciated. Happy Holidays!
Now 30+years, I had bloods testing + from the late '70s (I helped start the MAC studies)! No ARVs, diminished but stable CD4s, almost undetectable vl, only 2 head-colds in the last 10 years, but even I won't get out of this life alive ... though I've now been HIV+ for over 1/2 of my life (now 55). In SCOPE study at UCSF. ;)
I have been a viremic controller for about 11 years now with no meds and relatively high Tcell count and low vl. I've participated in the study mentioned above. I also have had my share of partying and still drink just for some perspective.
I was diagnosed at the age of 22 in 1999,it's now 11 yrs ever since.I don't live my life in any special way,don't hav any healthy habits.I must say am blessed with stress free job and that realy helps cause I don't worry much. I thank God for such a blessing and encourage people not to lose any hope one day we will all be free from the stigma attached.
This is another reason why Test & Treat approaches are harmful and inappropriate medicine. I am a nonprogressor, with no change after 5 years. Some have had no change or need for meds after 25 years. Putting people on ART right away does not allow time to see if it is even necessary, and nonprogressors are important to NOT medicate, because in their bodies are answers for a vaccine. For those that advocate for TNT approaches, please think again.
I am an elite controller - 6 years as undetectable without any medications. I also adhere to a highly spiritual regiment and healthy lifestyle and don't use drugs or alchohol, which i'm sure, helps.
-Continued from first comment- This discovery, and or subsequent work, might make the the single choice of Vaccine over Cure irrelevant!!!
Jose Diaz
The impact of HIV and other factors like the protein HLB-B is important to understand the progress from HIV to AIDS.Congratulations for a good job.
December 28, 2010 • San Juan, Puerto Rico