POZwelcomes New York City AIDS activist Marlene Diaz to What This Means(see also her profile, “Working Mom"). Each month, we will bealternating coverage of Marlene’s test results with those of PWAs SeanStrub and Stephen Gendin. In this issue, Marlene (whose last medicalinterview was in the August/September 1996 Checking In) fills us in onher treatment philosophy and how she and her daughter Margaretha, age5, are doing.

Knowledge ispower: That’s what guides me. When I was diagnosed in 1992, I wasscared, stressed and uninformed. As my CD4 counts nosedived, I gotterrified. When Margaretha tested positive at two months, all herdoctor had to offer was way-too-toxic AZT. That’s when I began toeducate myself on every aspect of this disease—which has made all thedifference. The more I learn about listening to my body, usingmedicines properly and countering symptoms with nutrients and herbs,the more I’m able to handle it. And the less scared I am when troubleflares.

Gaining this knowledge didn’t come overnight; it hastaken years. Years of asking questions, reading everything I could getmy hands on, going to conferences. And years of experience gropingtoward solutions for every new problem.

My first impulse aftermy diagnosis was to think about nutrition. My mother’s from Peru, sogood food and herbal teas were how you handled illness when I wasgrowing up. That rubbed off on me, so I began taking supplements andherbs. I also try to provide a highly nutritious diet for both of us.The diet/supplement combo has really eliminated symptoms, so we keep itup [see “The Diaz Medicine Chest”]. I also do acupuncture twice a monthand bodywork—shiatsu energy therapy and Swedish massage—when I can.

Takingcare of emotional well-being is also key: You deal with loss, fears,constantly being broke. Going to a therapist and participating in asupport group helped me greatly in keeping a positive attitude. Butrecently my therapy program lost its funding, and I no longer have timefor the group. So now I use the skills I’ve learned, and hang onto thatall-important belief in the possibility of our survival.

Yes,doing all this is very time-consuming. Plus it can be difficult to get60 pills a day into Margaretha—intense for a 5-year-old. And withinsurance not reimbursing for most supplements, it runs into big bucks.Margaretha’s supplements alone average $150 to $200 monthly.

Whatkeeps me sane is the duo of decent lab numbers and feeling good. OurCD4 percentages have always been a reassuring 30-plus; other numbershave fluctuated, but my current CD4 count is 460, with viral load at5,000, and Margaretha’s counts are 1,299 and 3,000. I’ve never had anopportunistic infection, although I get three or four bouts ofbronchitis a year. As an infant, Margaretha had wasting [reversed withan herbal formula called Bioradiance] and LIP, a type of pneumonia[untreated due to inadequate medical care; resolved with alternativetherapies]; she’s now fine.

I took Crixivan [indinavir]monotherapy for two years when it was still experimental, but had tostop because of kidney stones. Then I went on 3TC and d4T for 18months, until neuropathy forced me off them—although the pain hasworsened since then. For now, with my lab numbers fairly stable, I feelsafe in sticking with a drug-free protocol based on immune-supportivenutrients and herbs.

My philosophy is simple: Take anintegrated approach to the disease, both meds and complementarytherapies. But don’t be hard on yourself and don’t get overwhelmed.Step by step, just work everything into your schedule reasonably. Andnever forget to take time to enjoy your life. It’s not just aboutliving long, it’s about living well.

The Diaz Medicine Chest


Category: Nutrient supplementation        
Treatments: Earth Source Multinutrient tablets (with spirulina and wheatgrass)

Category: Antioxidant protection
Treatments: vitamin C tablets,* alpha-lipoic acid capsules, glutathione capsules

Category: Immunity enhancement
Treatments: Maitake mushroom capsules, Enhance herbal tablets, Resist herbal tablets

Category: Wasting prevention, blood-fat normalization
Treatments: Carnitor (carnitine) tablets (prescription paid by insurance)

Category: Liver support
Treatments: milk thistle caps, alpha-lipoic acid

Category: Neuropathy alleviation
Treatments: grape seed extract caps (GLA source)

Category: Absorption improvement
Treatments: glutamine powder

Category: Probiotic maintenance
Treatments: acidophilus capsules

Category: Gas prevention
Treatments: digestive enzyme tablets


Category: Antiretroviral action
Treatments: nelfinavir (Viracept) tablets, ddI (Videx) liquid, d4T (Zerit) capsules

Category: Nutrient supplementation
Treatments: chewable multivitamin, Twinlabs Miquick (multimineral) liquid, black currant oil capsules (for essential fatty acids)

Category: Antioxidant protection
Treatments: Prevail Children’s Antioxidant capsules, chewable vitamin C, glutathione capsules

Category: Immunity enhancement
Treatments: Prevail Children’s Defense capsules** (nutrients, plant enzymes and herbs), homeopathic remedies (cell salts)

Category: Heart fortification
Treatments: Co-enzyme Q-10 tablets

Category: Wasting prevention, blood-fat normalization
Treatments: Carnitor (carnitine) tablets

Category: Liver support
Treatments: milk thistle tincture***

Category: Probiotic maintenance
Treatments: acidophilus powder

Category: Gas prevention
Treatments: Prevail Children’s Digest capsules

Category: Hair brittleness alleviation
Treatments: silica liquid

*7-9 grams per day (tissue-saturation level for her—varies from person to person)
**Taken one week on, one week off
***Taken three times a week