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I will be 52. I have had HIV/AIDS for 27 years. I do feel like 72,near my own father's age. Being a serious artist has kept me alive.I lived in LA for near 30 years, and worked tirelessly pro bono for almost all the AIDS Service Centers. I have been told I made over a million dollars for these groups. I came back to Ill. because my father had serious operations.I now need to return to the gay community.I have many nuero problems,would love to be in a study.I am very isolated (google yahoo)
I am 22 years into my fight 4.5 years ago I developed Epilepsy it is not under control anticonvusants do not play well with antivirals, even though the Ep is HIV induced i have to medicate out of pocket. I have been on AVR most of my Hx and never had an AIDS diagnosis, Short and long term memory are full of holes Periferal Neuropathy is setting in in a non standard way. They need to pay better attention to us long termers as the cumulative effects compound and focus in us more clearly.
Runningoutofinspiration
It is not my temperament to complain but my life has been hell for decades-and it is not getting much better. Even though my viral burden flucuates around undetectable and my CD4 counts are above 1600+, HAND makes my life a living hell that I wouldn't wish upon my worst enemy. How much torture should we have to endure before someone puts us out of our misery?
November 13, 2010 • Salt Lake City