Write a Comment
22 Comments
Very nice site!
I have the opposite problem, too much fat in the wrong places due to lipodystrophy. I signed the letter, in a show of support for all of us that have this problem. I have heard that Egrifta, a drug to help treat people like me, is now FDA approved and my doctor is trying to get it for me. As a long-term survivor of 24 yrs, I understand more about medicine than I ever wanted to.
When it is actually the drugs causing facial wasting, and not HIV itself, I think the focus should actually be more pressure upon the pharmaceutical companies to refine their drugs to eliminate such side effects. Especially with recent price hikes in some medications; they can raise the prices, but we should overlook the physically/emotional/social scarring their drugs do - simply because it fights HIV to a degree? Class action lawsuit I say, instead of pressure for additional facial fillers.
This is a ridiculous request. With states ADAP budgets almost bankrupt and thousands waiting to gain access to life saving medications, asking for increase in federal support for this angers me. Any increase in federal finance support should go to those waiting to get medications they direly need. Yes there are extreme cases where folks do need facial reconstructive filling, I rather support keeping it as a Medicare billable item and keep additional funds for medication access
I hope they can approve an increase in the amount medicare will pay for this. It was exciting when I heard they appoved this but I still cannot afford it.
Ridiculous that the procedure is approved but no doctor is willing to do it for the paltry sum that Medicare is willing to pay. Even doctors that the VA recruits are unwilling to work with the minimal $$$ that the VA pays (similar to Medicare I think).
My hope is that is an understanding that the treatment not only nessessary for phyical wellbeing but mental well being for those with lipodystrophy.
randy schaefer
where do i sign the letter and get help as well im exhausted with medicare trying to figure it out
November 7, 2012 • kingman