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26 years positive. Sudden onset of acute fatigue knocks me out for 24hrs at a time. Neropathy in my feet and hands in controlled by morphine for the past 12 years. Now takeing 120mg throughout the day. Part-time work, on my terms only. Life is still good! I love my life. Even the days when I simply cannot get dressed, I make the most of every day. I love to garden, I am planting tons of bulbs for next spring. Clean liveing, n.s/n.d, helps to keep me mentaly healthy. Good friends are important.
I think that even your doctors should recognize the problems patients have in these areas.I have been poz since 2001 and have daily pain out of my neuropathy,gut,and I also suffer from depression,Reguardless of our counts these difficulties due to either the meds or infection itself is not in our imagination.I have been out of work and disabled since 2005 from every symtom mentioned in this article. Thanks
I tested positive in 1988 and had to retire from work in 1999. I have had these symptoms every single day for over twenty years. Now I have Parkinson's disease for the last seven years which only makes everything worse. The worst is fatigue followed by gut because of the 22 different medications I take every days, some multiple times a days. Thanks
every single one of those symptoms in this article I have felt for the last 6 years. too bad that this condition is not considered a disability by the ada.
Im HIV + and i recognised the symptoms described on here. I have pressure on my spinal cord and i need surgery. I have fatigue and stomag problems very often. Im only 35 and i have been so for the past few years. I have anxiety and stress. Thanks
These "fluctuating symptoms" are effecting school children too. My son is really struggling this year will them.
Mico
The worse was the neuropathy, caused by the meds and it began two years after I started. It didn't get better and all the meds couldn't stop it. The bad are doctors who just give another pill without wanting to say, it affects work performance. It got worse, but I adjusted, then the days of feeling wiped out, just no energy and I had to take a day off on average once a week. Then the insane sleep patterns. I finally had to quit work. It still bothers me. But, I'm alive.
October 18, 2011 • DC