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I have never had kidiet function problems on Truvada until thus year (2016). I changed to it plus Isentress about 4 years ago. My urine had a significant amount of protein in it this May and my GFR went below 60 to 56. This month, August, my GFR went lower to 53. My HIV doc changed me to Triumeq. I'm freaked out though because in the studies I've read even after you stop Truvada your kidney function doesn't go back to normal, at least not within six months to a year.
Why do all of your percentages refer to the chances of a 40 yr old male becoming ill from tenovavir?? We have a large percentage of clients (30 to 50%) at my ASO are 50 yrs old or older. About half of these are 60 or older! Get with it! HIV & Aging is a big topic & growing every year.
I will g o back to ziagen if the kidney doctor unmasking (lisinopril does not protect from truvada it masks protein leakage!) washing out of lisinipril and my 24hr urine is way worse then it is no brainer-hate to be off BP Meds for 3-4 days but only way to know how damaged kidneys are-good kidney doctor knew this, PCP and maybe ID did not thought lisinipril was helpful-yeah in selling truvade and keeping my kidney function looking better than it may actually be? I dunno but Ziagen is 99% 4 me...
I was switched to Ziagen - which may have its own set of problems (liver, cholesterol, heart) - but think it was the right choice for me.
While living in Florida seeing good ID doc, he had me on Truvada, Memorial Day weekend 2010 I went into renal failure, biopsy said severe allergic reaction to a drug, but couldn't pin point it. Had to be dialysis for 3 months! The nephrologist, a genius, shocked the kidneys back online with steroids, played hell with my diabetes, now off dialysis but still have reduced kidney function, the kidney doc was the only one that new it was the Truvada, the ID doc played dumb. Wish I had someone to sue.
What of other Nucleotide Inhibitors?
I moved to FL from AL a year ago.(Big Mistake, HIV care in FL is awful) The Doctors here switched my regiment to one that included Travada. My blood test began showing worse & worse kidney results. My normal kidney numbers went to 5 times the normal in one year. I'm now on a regiment that has more pills, but my kidney test are almost back to normal levels.
ColeB
(Con't) Has anyone seen their kidney function improve or go back to normal in any time after stopping Truvada. I'm freaking out. I will not do dialysis someday if this keeps going on, I work in health care and have seen what a miserable, no quality of life that is. Should I see a nephrologist at this early stage or wait out the time now not on Truvada? Appreciate all opinions!
August 7, 2016