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Living With the Downsides

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13 Comments

Lori Bo

It has left me ashamed. Took my right away to choose a partner. Haven’t had a relationship since 2012. My partner of 4.75 yrs never told me. He had full blown after a few years and lost the love of my life. People do not understand unless they are like me. I’m tainted and emotionally scarred until the day I die. Thank God I’m undetectable but that’s the only good thing that’s come from it

February 3, 2022 Texas

Jonathan Patrick

I can't figure out anything positive about HIV! While my life has continued to be just about normal and busy with kids and grandkids, you feel the loneliness and the fear of rejection. Love life has dropped to zero! Luckily I have a medical team that is second to none and I have been undetectable shortly after starting treatment. BUT... hiv is hiv and there is no way back. I am hiv positive and I, with the help of the Divine, have to make the best out of it!

January 20, 2020

Evan5555

No one can understand what to be hiv positive What fears and agony patient can tolerate what depression those meds brings to his daily fight hiv has being used to raise money to steel poeple to enrich other where all those funds had gone? Cureless there is a cure but seems profit comes first trade in buman being health No one can bear this burden it is a worse then death a daily death feeling

December 21, 2019 Usa

Moises

There is nothing positive about HIV but been positive for HIV.

December 17, 2019 NJ

Michael Indiana

I can relate to every story. Been positive for 14 years. I'm just damaged goods. If I meet someone I like and share my status before anything physical they always have an excuse to stop calling etc. HIV has taken away everything! You just live a lonely life till you die.

December 4, 2019

EricInLA

HIV+ since exposed in 1987. Meds saved my life by late 1996, just in time but lipodystrophy came on with a vengeance - and fixed as much with procedures, thankfully. Now, 22+ yrs of the meds I have meds related cognitive impairment ("like a pre-Alzheimer's feeling") & depression + more :-( Vaping THC concentrates all day makes me as normal as possible - THANK THE LORD! (but never high anymore)

December 1, 2019 LA,CA

EricInLA

HIV+ since exposed in 1987. Meds saved my life by late 1996, just in time but lipodystrophy came on with a vengeance - and fixed as much with procedures, thankfully. Now, 22+ yrs of the meds I have meds related cognitive impairment ("like a pre-Alzheimer's feeling") & depression + more :-( Vaping THC concentrates all day makes me as normal as possible - THANK THE LORD! (but never high anymore)

December 1, 2019 LA,CA

Tony Romano

I was very surprised to see my comments included in this posting. When I read my text I thought it could be about so many of the friends I've lost over the years who experienced the same fate as me. Losing jobs, bankruptcies, crippling side effects from so many of the early meds, the trials I've been involved in, The failures and successes. On the request of my doctors I shared my experiences with doctors and nurses and healthcare pros....and that helped with a better understanding for them.

November 28, 2019 California

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