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I to have fought for a very long time with this. I'm glad to see there are others, its hard to be alone! I've been HIV+ since 1986 and I have AIDs since 1999. I have lost a lot of friends and family because of it. But I'm a survivor. I almost lost my life 4 time during the coarse of fighting this illness but I'm still here. To all those like me out there.... WE ARE CHAMPIONS!!! I'm glad to KICK ASS! ( AIDs Survivor Syndrome ).
Affected since the start infected 89,probably was sooner but through those test results out b4 reading.Suffering burnout right now . Aids service work has been my life for over 30 years,some pay mostly volunteer. We need a group here and in a prior post Noah from Nashville my group buddy Lets do this. Lost phone and #'s a while back. Ill call Quoc and find you. Be well everybody. Find the JOY in this moment.Be Present.Be Kind.
As a 24 year survivor of AIDS. I do think there is an ASS issue. The trama of dealing with a near death issue and then suddenly turning my health around has been a challenge. I continue to be socially withdrawn, reclusive and feeling like I live day to day. I never have been in the gay mainstream, but felt no support when I did reach out. To me, a gay HIV positve man is like a minority living in a minority. It has been tough and I wish there was a ASS group in my area.
Don't care for the name. PTSD correlates to violence. Kicking ASS is not appropriate. As a researcher the most insightful title I've heard is Multiple AIDS related loss syndrome. And it is like chronic PTSD and pertains to everyone affected by the epidemic. Long term survivors (of which I am one 5/85 Eliza test confirmation)do have PTSD of some sort, being unable to process that much grief and stigma. I think you are headed in the right direction and need some help getting funded by the NIH.
WOW, I'm so glad someone has put a name to what I've been feeling for so long.I have been HIV since I was 20 y.o. in 1983. At every friends funeral I felt the guilt of survival. I feel like a toxic waistdump from the years of meds. I wish there was a chapter here. Great article!
I Think this program is great! What about us survivors in New England? There is nothing similar to this going on especially for women. Thanks
Interesting proposal. I was diagnosed almost ten years ago, so I would really appreciate the information from the data collected. Particularly like when to expect the onset of such a disease, and if A.S.S. is at all likely to occur for the "newly" diagnosed.
Ken
I was astounded by this list of symptoms. I have every single one of them and am running out of reasons or know how to cope with them. I am approaching my 28th years with HIV and live in a very rural area with zero supports groups or others like me. What do I do? Where do I turn? This is real and I am grateful to finally come across a article that gives what I have felt so long a name. However, now what? How can I make a difference? A Support group here is never going to happen.
February 20, 2015