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Understanding the Challenges Facing Long-Term Survivors

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8 Comments

Milomyluv

Great article and he was rite on about many things. While working in surgery i was stuck deeply by a trocar that still had Aids infected blood , i as tested daily and converted to HIV+ within 2.5 weeks it was 1992 i was 27 i was put on permanent disability and asked to leave my job. Now 57 i am very lucky and undetectable. As a straight female ive never felt like I fit in with others hiv+ because of how I got it. Yes when everyone goes to work and you cant Not part of society is hard.

May 2, 2020 CT

springflower414

I really found this article to be on point and exactly what I go through. I for one would really, really like to be part of the next older living survivor study as I am now going on 28 or so years with this blood disorder. both detected and undetected. Wow, I would really like to know if our liver is holding on to the meds and keeping us alive longer, or some study like that. Maybe just maybe WE the few could get a six month regimen and still survive undetected, and our liver would love us 4evr.

April 14, 2020

Elizabeth

I just finished reading your article and I am in total agreement. I myself was diagnosed in 1991 along with my fiancé. He did not survice and I am still here. I do socially isolate myself due to the virus and the effects it has taken on my body. As large as NY is I have tried different groups but find I don’t belong. I am. White heterosexual woman aged 59.

March 19, 2020 New York

Eduardo

Live and your learn. I read your article with hope of getting some message of understanding. But at the end what was said can apply to any old person. The sexual part after certain age diminishes, and other parts of human interaction become more necessary. Everyone is an individual, that means that what you are is what's defining you. Being is a philosofical term, a different spectrum, not biological.

March 19, 2020 SJ, PR

Donbblack

This year will be 30 years for me. I expected after diagnosis to have 3 years. I am not prepared mentally, or financially for this. I am scared.

March 19, 2020

Old Goat

I’m a 31 year LTS, infected late in’88 and diagnosed February 2nd 1989, quickly progressed to AIDS. I worked in the medical field but could not continue. Went on disability February 1992. I watched friends die, sometimes several in one day. I expected to as well, came very close several times. I regained a semblance of health when protease inhibitors arrived, with no insurance Medicaid and disability were the only choice. At 65 I am isolated and stuck.

March 19, 2020 Central Kansas

harleymc

We've been through so much, bereavements, health issues, discrimination. But from all of these we can draw the experience of being survivors. Like some of the subjects I've gone through periods of being to unwell to work. But time out of the workforce creates other opportunities to, for instance to be a carer or a volunteer, to study, exercise or join social groups. We can make our own opportunities and our own mind-set. We have to tackle self stigma.

March 14, 2020

ScottieTN

I, as a 30 year LTS, so relate to this article. Especially as one who left the workforce to die, only to live, and now feeling "stuck". It has become a lonesome place, as there's not much to look forward to. For a number of years, after my public announcement on World AIDS Day, 1994, there was a demand for a rural voice such as mine, to go out and share my story. That has all but ended, leaving me with a feeling of being forgotten. While grateful to be alive, but feel I still have much to offer.

March 13, 2020 Lebanon TN

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