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Five Things You Didn’t Know About HIV and Aging

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As a long term survivor, I can say that my future seems bright. No, I'm not rich or famous, but still feel alive and well! Looking for a man to be with, and starting a new career...HIV? Meh! I got this!

January 11, 2020 New York


Working in diagnostic Oncology and coming Out before HIV was a discussion has helped my two cents on this . Left out that Ive been living with HIV for 23 years and just had 60 Birthday HIV demands compliance and sooner or later will manifest trouble or be a side effect of treatment .eg . Globular disease or acute bacterial or pulmonary malaise . Lucky to have the medications we do now . Over time your gonna show appearance of long term side effects . Same exhausted , rapid aging with Oncology

January 10, 2020 TX


I describe myself as an experiment on the leading edge of a wave. Every projection in 30 yrs knowing my status was revised more than once. Diagnosed in 89 with 2-5 yr life expected, turned out to be a mysterious “elite suppressor” for the first 15 yrs. Then that started to slide & just started 4th hiv regime in 15 yrs. Yes to neuropathy, arthritis, bone loss, kidney damage, exotic T8 cell leukemia. Immensely fortunate otherwise. Being elderly is a separate stress with little structural support

January 10, 2020 New York


Thank you for this, very affirming. I'm "only" 60, have been living with the virus for a long time and am generally okay with most of the issues around it - we humans are so amazing at adapting to what is thrown at us! Acknowledging our mortality and often short or long periods of loneliness can be most tricky to deal with. We need to help and reach out to each other and make each moment count - we are a long time dead!

January 9, 2020 UK

Susan K.

thank you so much for being honest. Aging itself is hard to do but was HIV combined it's been harder. Not so much the HIV but the comorbidities really stink. I have six of those including diabetes arthritis stenosis etc etc. I advocate for HIV diabetes and arthritis and some days I just think what am I doing but other days HIV medication really help my situation. Just hang in there enjoy living as long as you can and just count your blessings. Thank you again for being so honest. I'm 68.????

January 9, 2020 S.C.


It has been a long, challenging 35 years for me since being diagnosed. Trying meds, then not trying, dealing with various forms of pneumonia, neuropathy, and chronic fatigue. Through all this only missed 6 months of work until 2010 and was a train wreck for heart issues from Dr.s not treating my high Blood Pressure, cholesterol levels, etc...Well, after two heart attacks and a mild stroke, and neurocognitive issues still here now on Bitkarvy, and other issues. Not so easy for some! 60 soon...

January 9, 2020


I have been called a "miracle child" by some practitioners. I often think that may be the case as well, especially with the years of depression and poor coping skills of drinking that went with it. No, 53 is not consider "old", but having been POZ 27 years, that is considered old. I have been blessed with good health and have been pretty active and ate well (less some cocktails). I feel that maintaining a positive spirituality is also very important. KEEP ON KEEPING ON!

January 9, 2020 Kansas


Thanks for sharing your experience, but I think this article's tone is problematic because it doesn't address the intersectionality between HIV and race, class, gender identity, income inequality, etc. Additionally, the majority of clients I work with have certainly not "learned to handle HIV stigma long ago" as you put it. For many, this stigma has become internalized and led to loneliness and isolation, which contributes to health disparities like depression, anxiety, and cognitive issues.

January 9, 2020 Rhode Island


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