25 Years Ago: ACT UP's AIDS Treatment Research Agenda
ACT UP's press conference at the International AIDS Conference in Montreal, June, 1989
25 years ago today, the Fifth International AIDS Conference closed in Montreal, and AIDS activism changed forever. The white coats -- the medical establishment that controlled our destinies -- realized they could no longer ignore us. People living with HIV and their fellow advocates pushed their way into the conference (literally, during the opening ceremony), and came armed with a sophisticated analysis of the sorry state of AIDS treatment research.
ACT UP New York's Treatment & Data Committee released a fifteen page report titled A National AIDS Treatment Agenda that wowed the researchers in attendance. I have so many powerful memories from that conference, but one, completely-unrecorded event stands out. If the annual international AIDS conferences had "A-Lists," then the must-attend A-lister event each year was always amfAR's big invitation-only reception. Since most of the T&D boys had slept with many of amfAR's young staffers, we easily procured some invites. As I worked the room, it became obvious that everyone was buzzing about ACT UP's report. I circled back to Mark Harrington, and we marveled at what felt like a pivotal moment for AIDS activism. We had no only demanded a seat at the table, we had earned it.
To my knowledge, the report has never been posted online. I've uploaded a PDF version here.
Tomorrow, at a meeting at the CDC, ACT UP will be releasing another document titled The Atlanta Principles, which will offer an analysis of what's wrong with today's HIV prevention efforts, and a plan for fixing them. With new infections tragically stuck at almost 50,000 a year in the U.S. -- a statistic that hasn't budged since the early 1990's -- it's a national disgrace that we've never tackled preventing HIV, like we did with treating it. Mark my words, that's about to change.