How many people in New York State filled a prescription for Truvada as Pre-Exposure Prophylaxis (PrEP) in 2018?  What was the breakdown by sex, age, or race/ethnicity?  These are some of the key questions we at the Ending the Epidemic (ETE) Dashboard are asking and trying to address.  The ETE Dashboard system tracks and disseminates key data and metrics on progress towards achieving New York State’s Ending the AIDS Epidemic Initiative’s goals, and our latest interactive feature presents the most comprehensive set of PrEP use data in New York State to date.

Between January – June 2018, 24,400 individuals filled a PrEP prescription, a 16% increase from the prior 6 months (July – December 2017).  Building off of our previously released data on PrEP use among individuals covered by Medicaid, this new visualization more closely represents all PrEP prescriptions filled in New York, including both Medicaid and non-Medicaid covered individuals from the data source Source Healthcare Analytics (Symphony).1 The latest Dashboard data show that 5,857 of these individuals were Medicaid clients and 18,543 were non-Medicaid clients during the first half of 2018.

Disparities in PrEP use

Increasing access to PrEP for HIV negative persons is a key component of New York State’s Ending the Epidemic initiative and while the data reflect a considerable overall increase in PrEP use since 2014, they also indicate key disparities when viewing the data by sex, age, race/ethnicity, and geographic region:

  •  Among the 24,400 individuals who filled a PrEP prescription between January-June 2018:
    • 22,522 (92%) were male versus 1,878 (8%) female
    • 10,068 (41%) were White/Caucasian, 3,335 (14%) Black/African-American, and 2,000 (8%) Hispanic. Note: A large proportion of individuals in this data set (8,997 [37%]) were characterized as Other/Missing/Unknown race.
    • 7,766 (32%) were under the age of 30
    • Meanwhile, in 2017, 79% of new HIV diagnoses were among males, 83% among persons of color, and 39% under the age of 30.

    Using these data to monitor trends in PrEP use and focus our attention on the persistent disparities in access to biomedical HIV prevention may be crucial to address key challenges in meeting our targets for ending the epidemic.   As evidenced from the data, there is disproportionately higher PrEP use among Whites, for example, when considering their substantially lower new HIV diagnosis numbers and rates as compared to Blacks or Latino/Hispanics.   These data represent a call to action to prevent further exacerbating existing racial/ethnic disparities in HIV incidence, and have the potential to inform program planning around the ongoing scale-up efforts to improve equitable access to PrEP across New York State.

    Medicaid vs non-Medicaid

    This new more comprehensive visualization of PrEP use in New York presents a much larger picture of PrEP use across the state, which was previously restricted to clients of Medicaid.  We still provide an option for viewing Medicaid-only, a key population for all HIV prevention related efforts.  As evidenced on the Dashboard homepage, the NYS DOH AIDS Institute has a Medicaid-specific ETE target to increase PrEP use among Medicaid recipients to 30,000 by the end of 2020.

    Geographic breakdown

    The interactivity of the visualization allows users to stratify the data by demographics or geographic region (Ryan White Region or NYC borough level).  It further breaks down the data by statewide, rest of state (NYS excluding NYC), and NYC, so the user can view demographic trends within NYC separately from the rest of the state. 


    1Source Healthcare Analytics (Symphony) was used to extract prescription data for all payors with the exception of Medicaid.  The Medicaid data is pulled separately from the NYS Medicaid Data Warehouse (MDW).  While Source Healthcare Analytics (Symphony) data contains over 90% of the prescriptions dispensed nationally, this does not mean that the completeness of the PrEP prescriptions filled is necessarily at 90%.  This is due to a lower level of completeness of medical claim information in Symphony, which the NYS PrEP algorithm relies on for excluding prescriptions for individuals with other conditions (HIV, HBV).

    The Ending the Epidemic (ETE) Dashboard was designed and developed by the Institute for Implementation Science in Population Health at the CUNY Graduate School of Public Health & Health Policy of the City University of New York.  The purpose of the ETE Dashboard is to measure, track and disseminate actionable information on progress towards achieving New York State’s Ending the Epidemic Initiative’s goals to all interested stakeholders.The ETE Dashboard project is funded by the New York State Department of Health AIDS Institute.