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I am glad to see this since many assistance programs follow number guidelines to determine eligibility. Being diagnosed at a CD4 well below the then recommended threshold of 200 was the determining factor allowing me to have my Atripla paid for at a cost of $1544.00 per month at the time, now $1837.00 per month. I hope insurance, medicaid, ADAP, and medicare take heed to these recommendations. Having seen first hand the effects of thrush, cancer, tumors, kidney failure, brain lesions, neuropathy, and pneumonia, I know unequivocally what can happen once the immune system is allowed to be decimated and have been graced by the stories of those who were able to start treatment early enough to enjoy immune response recovery and good health.
Thank you for cutting it to the chase.
jeff
I live in fort lauderdale, have for 5 years now. For the last 2 years I've been getting my treatment through Care Resource. THis July 1, due to broward county not performing a basic upload function showing that meds had been picked up on time each month the state has booted me out of my adapt program and put me at the rear of the waiting list. So finally I got a case worker through care resource (I applied several times over the 2 yrs I've been seen there). My case worker has (I believe) been trying to get me on the PAP programs, Abbott, and Gilead have been approved but Bristol Myers (reyataz) has declined (according to the case worker) so he tried under a new script from my dr for prezista. When I spoke to the doctor over a week ago he told me that my case worker was having the same problem getting this drug and was still pursueing reyataz. I called the case worker on thursday asking for an update, waited 24 hours and no call, so I called again requesting an update and that I was real stressed out (been without meds now for several weeks, he knew about my frustration), still no call, I called and let him know I found some reyataz that could get me by for a couple of month if he would just get the other drugs ready for me to pickup, no call back, I called the director and asked for her assistance, that was on friday not it's monday evening and not 1 returned call and I'm still without meds. They're ruining my health and no one should be treated like this, I'm looking for another venue to get quality care not from an organization such as "Care Resource" in Fort Lauderdale or Miami, MY RECOMMENDATION IS FOR EVERYONE TO AVOID GETTING YOUR TREATMENT FROM THEM!!! On top of this, the new drug that was approved I cannot take, it's sulfa based and I'm deadly allergic to that, it's in my file and if I had tried it without doing research on my own I may have died from their deglect and lack of attention to detail. AGAIN, DO NOT USE CARE RESOURCE AS YOUR PLACE TO GET ASSISTANCE FOR YOU HIV CONDITION, THEY DON'T CARE AND THEY MAY KILL YOU ANY WAY, sincerely jeff davis
August 23, 2010