October #95 : Stayin’ Alive: A Game Plan - by Tim Murphy

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Table of Contents

The Clock Watchers

After Ibn Zuhur

Stayin’ Alive: A Game Plan

I Wanna New Drug!

In Cold Blood

Unfine China

Maine Idea

Bayer's BIG Headache

Neg & Pos

Gone Shopping

The Bug Stops Here

Milestones

Documania

For Pete's Sake

Wake-Up Call

Heavenly & Hazardous

Shock and Blah

Publisher's Letter

Mailbox

O Lady Liberate:

O Cash up Front:

Tastes Great! Less Filling!

Tat Caveat

Only A Test

Lipodystrophy

New Meds On The Shelf

Book Report

60% of HIVers Now Survive Lymphoma

Zip Your Lipids

Tea Cells

Paris When It Sizzled

Playing It Safe And Sexy

HEP Or HIV?

The Soprano

Dementia

Butch And Moan

Toxic Avengers



Most Popular Lessons

The HIV Life Cycle

Shingles

Herpes Simplex Virus

Syphilis & Neurosyphilis

Treatments for Opportunistic Infections (OIs)

What is AIDS & HIV?

Hepatitis & HIV


email print

October 2003

Stayin’ Alive: A Game Plan

by Tim Murphy

Think you’ve hit the end of the road? Here’s a step-by-step survival guide:

Think you’ve hit the end of the road? Here’s a step-by-step survival guide:

1. TAKE A DEEP BREATH You’re not going anywhere soon. Some HIVers with few or no T cells have lived for years without illness just by taking anti-infection meds like Bactrim. Go to www.aidsmeds.com, click “Lessons,” then “Opportunistic Infections (OIs)” for a complete rundown.

2. DEMAND TOP CARE Doc says you’re out of luck? Don’t stand for it. Call your local AIDS group, the American Academy of HIV Medicine (866.241.9601) and the National Institutes of Health (800.HIV.0440) and tell them you need cutting-edge care. Often, it’s at a university or research hospital.

3. GET IN THE LOOP Go to www.aidsinfo.nih.gov/clinical_trials/, click “Treatment Experienced/Failure” and search for trials or expanded-access programs that may be right for you (do your best with the medical jargon). If there’s a trial site near you, dial the number. It just might save your life.

4. FIGHT FOR YOUR LIFE The veteran fighters of AIDS Treatment Activists Coalition, many of them HIV positive, need fresh faces and voices to help push Uncle Sam and Big Pharma for new therapies (and, hello, a cure). Learn what they’re about and find out how to join up at www.atac-usa.org.

5. DON’T DO IT ALONE Seek the support of a shrink, HIVer group, whatever you can find. Most of all? “Never take no for an answer,” urges Sharon Wagner. Poet Tory Dent puts it plainly: “Just hang in there.”




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