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I also suffered very noticeable lipoatrophy on face/butt/legs due to Zerit and other meds which gave me daily bouts of diarrhea. Years ago changed meds to Sustiva/Ziagen/Viread but both problems persisted until one day i had the epiphany of NOT taking Ziagen/Viread together at breakfast time and taking them instead after my daily big dinners (lots of natural fiber/roughage) ? For the past 4 months the diarrhea has improved about 90% and i can swear my face+ass began to regain some fat !
I have been on azt for maybe 15 yrs. and I have the face to prove it. I am thinking of changin the azt, the problem is that I'm doing well. Any opinions out there?
I have had HIV since 1984 and gone thru every treatment and med. I think meds play apart but I started losing weight prior to treatment and have change from the meds associate with weight loss, 7 years ago but yet I have not regained any body fat in my face or butt. I just realize until there is a cure for the virus, I will be stuck looking like this, but as I get older it won't matter anyway, my body will represent my age.
I have been off Zerit for several years now, never took Retrovir, and still look like a skeleton! My weight is not really redistributing, it is falling off. Down 30 lbs even though I continue to eat as much as possible, including lots of protein, plus I work out to try to build up. I had already heard we never lose fat cells, but think mine are empty!
Not sure what this means for people like me, who have lipodystrophy WITHOUT ever having taken HIV meds. Clearly, HIV infection alone plays some role in the development of lipo. If my body is still producing fat cells at this point, I'd love to know where they are. The only place I can see them is in my abdomen.
i have been on lamuvudin and efivarez for about three years but my worry is, i lost almost all the fat in feet cos am now experiencing double colour feet i.e some areas are black others are a bit spoty black. sometime i feel ashamed to put on open shoes but the rest of my body is normal size and not so noticeable.p'se advise on how i can bring back my feet colour down on the legs.thanks
I was on AZT mono in 1987. Did the zerit and epivir thing for several years. Lost so much fat in face and butt that I use a donut to sit on when traveling. Veins popping out of my arms and legs look kinda wierd. Have not been on these nukes for 13 years, still waiting for the results noted in the article. Sometimes I don't even want to look at myself in the mirror. Stay in gym for the rest of the body.
John
This is an interesting article, but it completely neglects people like me. I have lipoatrophy that is solely the result of HIV infection. I have never taken any antiretroviral medications, but I have had pretty severe fat loss in my face, arms, legs, hands, feet, and buttocks. I'd like to believe that my body is still producing fat cells to replace the ones I've lost, but if it's really doing that, it's not replacing them at nearly the rate at which they're being lost.
June 25, 2008 • San Francisco